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The Styrke Foundation For Rare Disease and Treatment assists respected scientists and organizations in developing pre-clinical and clinical therapies for ultra-rare illnesses.

We are determined to find cures for these unmet medical needs and, ultimately, a cure for as many disorders as possible.

Who are we looking for?

We are looking for committed risk-takers and innovators. People who believe a better path exists and are willing to embrace the reality that stryke’s motto ‘with strength’ isn’t just about the children we serve. It’s about the commitment we have to solving one of the most egregious and unspoken realities about ultra rare disease. That could be…

  • Scientists
  • Research Laboratories
  • Institutions
  • Companies

…Who are innovating and bringing gene therapy cures to patients

Application Process

Grant proposals are accepted throughout the year. Grant awards are made through a careful and detailed selection process.

Our Board of Directors examines each proposal with the assistance from subject matter experts.

Our Board of Directors meets approximately four times a year, at which time all recommended grant applications are carefully considered as the Board makes its final decision.

General Conditions For The Awarding Of Research Grants

  1.  Gifts to your project were solicited specifically for research, development, translation of pre-clinical programs into clinical and commercially available products and related support. The individual donors have been acknowledged by the Foundation. Because of the donors’ expectations, all funds should go directly to your work.

  2. The Board requires progress reports at regular intervals. While these reports need not be lengthy, they are essential to:
    1. Satisfy the express wishes of donors
    2. Allow evaluation of progress by scientific advisors
    3. Assist in future fundraising efforts by the Foundation
  3. Consistent with the practices of other private genetic research organizations, the Foundation may, from time to time, organize workshops, briefings or scientific interchanges.  We would have such meetings only if they were consistent with your schedule and if they would be productive.  We trust that you would be available within reasonable limits of time and travel.
  4. Any publications distributed because of your research should give proper reference to The Styrke Foundation for Rare Disease and Treatment. Copies of such publications should be emailed to Anne Yang.

  5. It should be understood that no patents relating to this research shall be applied for, sought after or secured without prior expressed agreement that sets forth the terms of ownership.

  6. The Board expects that all who are supported by the Foundation will cooperate with other scientists studying rare disease to the maximum feasible extent. We hope for the success of each project, and believe that research conducted in the public domain will best foster success. Therefore, the Foundation will request the (commercially reasonable) sharing of information, research results, cell lines, and testing requirements produced as a result of this award.

    This expectation is being shared in these exact terms with each researcher.

Apply for Funding

To apply for grant funding, please submit the form below. We look forward to hearing from you.