12 February 2026
Launched today is a global survey of the DBAS Patient and Caregiver Experience to support leading medical research in the rare genetic disease of Diamond-Blackfan...
12 December 2025
Meeting regarding the rare genetic disease of Diamond Blackfan Anemia Syndrome with patients, caregivers, FDA, medical product developers, healthcare providers and federal partners to give...
26 August 2025
When people think about rare diseases, they may think of treatments and outcomes. For patients with Diamond-Blackfan Anemia (DBA), they usually think about red blood...
5 August 2025
If you’re new to Diamond-Blackfan Anemia (DBA), odds are the word “transfusion” has come up a lot. And while doctors might run through the science...
16 July 2025
Corticosteroids, which are one treatment option for Diamond Blackfan Anemia, might sound a bit unconventional when you first hear it from your doctor. Maybe your...
1 July 2025
By Kuzey Sagnak The words “bone marrow biopsy” sound super intense. If you or your child were just told you need one, your mind probably...
10 June 2025
When a child is unusually pale, tires easily, or fails to thrive during infancy, parents and doctors often begin a long journey toward answers. One...
10 June 2025
When people think of major medical research, conditions like cancer, diabetes, or heart disease may come to mind — widespread illnesses with large patient populations....
25 April 2025
The Styrke Foundation for Rare Disease Research and Treatment were so heartened to see our work acknowledged in the recent edition of RARE Revolution Magazine....
